Vlog 1: Don't Misunderstand My Child with SPD


Uploaded by softclothing on 17.06.2010

Transcript:
Hi, my name is Jessica Ralli, the director of Soft Clothing for All Children. We're starting this new series of Vlogs, Video blogging.
I will be doing a weekly Vlog with my wonderful intern Brie. We'll be starting with helpful tips for parents of children with Autism and SPD.
Before we do that, something really amazing happened on Facebook yesterday. I wanted to share it, the question came out of we're brainstorming right now, what are things we can do for SPD awareness month. Which is in October.
As usual I like to get input from our fans on Facebook. I asked what would be a good idea for us to do and a parent came up with a great idea to do an advertising campaign 0:01:17.000,0:01:39.000 about SPD awareness. When I thought about that, what would that be? So my question to the Facebook community was: Often parents of children with special needs feel very misunderstood or feel their children are misunderstood. If you could tell the world one thing about your child with SPD, what would it be?
There are now I think over 35 and no ok start over...
Mary writes: My child is neither a brat nor is he overindulged.
Melissa writes: Just because he or she can't tell you what's wrong doesn't mean they're being rude.
CL writes: Im not a bad parent who doesn't properly discipline their child, my child can't help it when he acts the way he does he needs more understanding and fewer dirty looks.
Katrina writes: My child is bright intelligent, she is herself and no she does not need a spanking. No one understands her and when they get to know her she is awesome sweet and loving.
Carol writes: Its so nice to read all these comments, I am not alone, my boy isn't manipulative, he's autistic.
Marisa writes: I love my child with all my heart, even when I don't understand her need. Im not a bad parent because I choose not to battle over food. I pick my battles, this one Im not going to win. Let there be peace at the dinner table, even with peanut butter & jelly sandwiches or mac & cheese.
Dana writes: They are trying very hard to keep it all under control but sometimes they can't no matter how hard they try. It's not a temper tantrum its a cry for help. Don't judge just ask what you can do to assist - be kind and gentle in dealing. SPD is real, its not a bad kid or a spoiled kid acting out no matter how much you might think you know you have no idea until you've lived with it every day, morning noon and night.
Jennifer writes: Just because my child doesn't always say hi or goodbye doesn't mean he doesn't have manners and if he leaves the room suddenly it may be because there is too much stimulation and he's having a hard time processing it all. Before you judge, maybe you should ask.
Thank you so much to all the parents who have been commenting on the Facebook page. We're now going to brainstorm something really amazing to do with all of this feedback that you've given us.
I think its one of the hardest things when you're working so hard as a parent there are so many small successes that you're feeling everyday but to other people they don't look like successes so you're not getting that same positive feedback that a lot of parents with typically developing children get more often.
I think its important the more people that are aware of what SPD looks like then maybe the less understood you'll feel. So we will get to work on that and do what we can. Thank you.